Friday, May 28, 2010

Jaylee's Birthday!

So we had Jaylee's First birthday last week!! Considering where we had to spend it, we still had alot of fun! Grandma and Grandpa Stauffer were able to come up and celebrate with us too. One of the best things about the day, was Jaylee's doctors let us take her outside!! She had not been outside in almost two months! The day was a little overcast, but it was nice because then it didn't hurt her eyes. She loved it!! I think it was good for all of us to get out for a little bit.

So now we try to take a walk outside, or in the halls even, everyday. It makes a world of difference for Jaylee! She gets so bored in her room day after day. So this is a good change for her!

As far as going home, we are still waiting for her platelets to stay high enough for her to get them every other day. So we are trying to be patient with this waiting game. We have gotten to the point where we don't even want to tell us if they THINK we might be going home later in the week, we are just going to wait until they come in in the morning and tell us we are going home that day. We are tired of getting our hopes up and then it not happening.

Tuesday, May 11, 2010


I know, I know! I am a slacker! I apologize for it taking so long to give an update, and believe me there are quite a few. First off, Jaylee is doing SOOO much better! All of her mouth sores are gone and there is no longer any bleeding. Yeah!! It is so good to finally see her happy again. And she IS happy! smiling and laughing all the time. She is still bald as ever, but now has a bald companion in her dad! About a week after we shaved Jaylee's head, we also shaved Jeff's. I don't know if he totally digs it but I LOVE it! I think he looks so good. Just this last week was my first mothers day and even though we were still in the hospital it was still a very pleasant day. As far as when we are supposed to go home, we are still waiting for her platelet's to stay high enough. She is getting platelet's transfusions about every other day if not everyday. They want her to be able to keep them high enough for her to just get them three times a week before they feel ready to let us go. They also discovered a bacteria in her central line and are still waiting for the cultures to come back before they will know if they have to replace her line or not. This week seems to have been a really hard week for me. I guess I had really gotten my hopes up that we could be home for mothers day and when I found out that is was still going to be another week or so, it really got me down. I just hope and pray that we could at LEAST be home for her first birthday! It would really suck not being able to celebrate at home. We again thank you all for your prayers and support! They help us so much! Love you all!